
P.S Decided in the end to do a virtual card raya in the end...hehee
Friday, September 18, 2009
Eid Mubarak...Kullu 'Am Wa Antum Bikhair..
Posted by
Mamapinkie
at
12:01 AM
0
comments
Thursday, August 20, 2009
Ramadhan Mubarak!
Anyway, may this Ramadhan be more fruitful, blessed and filled with lots of Ibadah to get the blessings of Allah..amin..Insya-Allah...I hope this year too I will get to perform tarawikh congregation sometimes too as most of the time I have been doing at home only ever since having Ridhwan....as they say, we plan but Allah decides what is best for us kan...wallahualam...
To all family, friends and muslims out there, may this Ramadhan be a blessed Ramadhan for all of you this year and may all our ibadah be accepted by the Almighty..amin..Insya-Allah...WELCOME RAMADHAN!! WELCOME!
Posted by
Mamapinkie
at
8:26 PM
1 comments
Saturday, August 08, 2009
Freaked myself out!
So this morning, my hubby told me to call up the center to see if they made any screening..called..no one answered...so okay, think I have called them way too early...hehee... then decided, okay sms to the principal then...but since my grandmother was warded into the HDU in Damansara Specialist Hospital..that's another story here..we decided to send my mom first to DSH then go to TwiddleWink to check out IF they have any screening..and so we dropped off my mom...rushed to Jalan Abg. Hj. Openg...and then we saw the principal and her lovely kids...then one by one saw Ridhwan's classmates pulak..and said to ourselves..."So how? They saw us already...go in? leave?...they seemed okay...not sick or anything..." ...and somehow, without us realising...or we did...I took Ridhwan and brought him to class! Oh god, am I a hypocrit now?! :( ....so since I went into class now with Ridhwan, I told hubby to talk to the principal and ask her if she plans to do any screening on the kids and how is she curbing or doing whatever with this H1N1 thingy going out...
So, one hour came and went by...I had fun in class...I think Ridhwan did too! ;) ..and after the class I asked hubby what was the principal's opinion in what hubby was going to ask...which was the temperature screening tests on children...and so this is what she said...she has asked Dr. Musa one of the best paeds around and a doctor in DSH and other paeds around too, and most of them say, this screening test is not going to make any difference anymore...this H1N1 is now locally transmitted and there is no way in determining if one has it by doing any temperature screening on them...so in short...no point doing any temp screening on the kids or the adults....hmmm...quite true also cause as it is, we don't see any of these anymore in the hospitals as now only I recalled that our neuro paed mentioned they too decided it was a waste of time as its already pandemic and these temp screening would make no difference anyway...hmmm... then the principal continued to tell my hubby an interesting yet very true point to him....she believes, that they are promoting and hoping to instill in parents and especially children that a happy child will always be a healthy child..and by them being happy, with gods will, they too Insya-Allah will be healthy....gosh..that is so true kan..I mean, its logic too in a way...cause look at us ourseleves...if we are happy, we feel good, our whole body works well and our systems just works at its best...but when sometimes we feel sad, upset, angry..then comes the back ache lah...sore throat lah...runny nose suddenly comes..and many more...true right? ...So today i was reminded again...how one can sometimes forgets and panics so easily at times ya....that anything that happens is god 's will...and we as humans really can't do anything much...BUT ....doa...yes...doa...that's the one powerful tool we must believe in kan...how could I let myself worry so much ya...oh well, I'm only human right, I do have my weaknesses....or maybe its that time of the month..darn it...oops..hehee...
So, today lessoned learned....yes, I may have panicked, thanks to that I sort of cancelled an outing that was planned ages for tomorrow..but then other circumstances associated to it can't be avoided....and so, one must always...I repeat ...always turn to Allah at times of worrying and distress....I may have gone a bit worried, more than usual...plus seeing the situation at the hospital....I think indirectly seeing the list by my paed made me lost it too! Hahhaa...and I guess the fear...yes, the fear of thinking how awful it was to be in the hospital for nearly a month last year still haunts me till today...hmm, haunt? is that a right word here....anyway, the fear lead me to be even more scared and be over protective towards my one son...my dear darling son....also, with addition to my husband's fear of H1N1 stories from close friends and family members....oh well, all that must have added into it ya.!...you see, I thought when you've been in and out of the hospital a lot of times, it should prepare you for the worst, right...well...I guess I am only human, cause truthfully it doesn't...but then, its all about faith isn't it...have faith that your child will always be protected and most of all...have faith Allah is always there with you...Insya-Allah
But, despite the short term panic me and hubby had...yes...hubby too panicked and freaked out! Hahhaaa....I will still try to avoid crowded areas at least for Ridhwan....cause he still needs to be protected someway in another...as best as I can kan...so, for that, just carry that extra adult and child mask in your handbag ....and that hand sanitizer too...you never know when you need it...and as they say....prevention is better cure...and I pray may Allah protects us all in this pandemic time...Insya-Allah....wallahualam....
Posted by
Mamapinkie
at
5:47 PM
0
comments
Thursday, August 06, 2009
H1N1...social distancing...
My dear friends, I think for those with small children and staying with your elders, it is about time to do social distancing...and that goes for me too! I remembered my mom complaining that she read in the newspaper and said after all these cases slowly rising now only they say to do social distancing..when initially they kept saying, don't worry, its okay, our country is handling it well...banyak lah handling well, my foot!! sorry for my language...From what I heard from my paed yesterday...SDMC or formerly known as SJMC has been chosen by the ministry as one of the hospitals to accept H1N1 cases on 17th July onwards as Sungai Buloh hospital could not accommodate the amount of cases coming in anymore...not only that....IMR and Sungai Buloh too could not do the tests as much as they wanted to as to determine if a patient does have H1N1 cause they could only do a maximum of 180 test per day...soooo, because of that, now only the health ministry is planning to purchase more machines to do the testing not just in the Klang Valley but in Johor, Melaka and so forth..and when did they suddenly decide this...ummm, after we have already reached 1000 cases!!!! So, it seems that last weekend there was a dialogue between the public and the ministry in SDMC..hmm..tak dengar lah pulak about that kan...and our paed told us that many, many questions were being throwned at the minsitry..hmm..wonder what were the answers lah ya!...but not only that, it shows too many are having flu these days ...as our paed said, the ER is so packed these days that at one time, she saw people and only people in the ER as people are coming to get themselves checked....now, isn't that scrarry!
Anyway, this pandemic is somewhat scarring me a little...correction...a lot today ....as when I went yesterday to SDMC for Ridhwan's follow up check up and to get his medications...the sight of the hospitals has definitely changed....2 weeks ago, the nurses/reception people at the clinic was happily smilling and entertaining us without wearing any mask and practically touching every little cute kid that came to the clinic...yesterday? ...everyone...I mean, nearly ALL hospital staffs were wearing a mask!! Especially the ones working at clinics...even nurses who is only on stand by shift at the clinics did not forget to wear one...scarry tak? ...not only that, the majority of the little children who came to the clinic was either coughing and sneezing...and I heard the nurse telling our paed, 'Semua nie datang pasal tak sihat doctor....' god was I panicking at that time!!....so told hubby to place Ridhwan far far away from anyone who seems to be sick or with a flu and I will only call him and Ridhwan when it was our turn..and so I too took out my ever ready mask in my handbag and wore it...yes, call me paranoid but I have a stash of adult and child mask in my handbag along with Dettol's hand sanitizer....yup, when you're a mom, you're a mom....heheee...also, one must always be prepared for the worse right....heck since school I was always the one who had everything, tissue lah, stapler lah, staples lah, everything lah...hehee...now that I am a mom, lagi lah the handbag is packed with other things...now my hubby knows why in the world I want a big handbag aje yea ;) hehehe....
Well, back to the story of the hospital...and our paed...and so I asked her are these children in the wards having H1N1...she said not all..only severe ones, cause most of them who has H1N1 are asked to go home for home quarantine as they can't afford for non-H1N1 patients to contract that flu pulak while in the hospital...hmm...there's a logic in that isn't it...but one thing that is worrying her...are the childrens...too many are having the flu, not H1N1 that is, of course some are..and those with seizures are getting even worse seizures where they are having non-stop seizures in them!! Hah!! Nauzubillah...for a mother who has gone through an awful episode last year where her child had seizures for nearly 3 weeks that came and go..to hear that news...that scares her very much...as she realises also, that special needs children somehow has low immunity due to their condition...so in conclusion...Ridhwan is strictly staying at home from now on!!! Call me an over protectice mother...getting paranoid for no reason...but seeing that list of patients in the ward at SDMC..and mind you, that is only under our neuro paed...god knows, how other doctors in that hospitals have how many patients under them! ....for that I think it is best for me to share this info that I have learned yesterday and call out to all mothers and parents out there...despite what the news are telling us...or the media are telling I think it is no harm in taking extra extra precautions to ensure the safety of our children....I know, you have just gotta watch that movie, you promised them..you always wanted to eat in that restaurant with them all this while...you miss bringing them to the park and let them play their hearts out...but think...is their health...is their life means so little to us that we keep closing our eyes and do our normal routine and ignore the ongoing increase in the number of cases and the deaths that is somehow affecting more of the young ones....the children...
Thus, lets try to be patient ..and that goes to me too you know! ...and sort of home quarantine our child and probably us in these hard times for the benefit of our children and us too...when you have seen your child in and out of the hospital so often, trust me...no mother should endure that and should want to go that...these little children needs us to guide them and protect them...let us be those mothers and parents ya...Insya-Allah...
Posted by
Mamapinkie
at
5:18 PM
0
comments
Thursday, July 30, 2009
More of Neurosuit...
Anyway, the seminar was a whole day event...from 9 am to 5 pm, thus Ridhwan is stuck with his dad...hahaa....good practice for my husband anyway...but of course, his ever loving grandmother is just a room away...hehee...throughout the seminar I did miss him a lot and wondering how he was doing at home but most of all, trying to see if this Neurosuit is suitable for Ridhwan or not...
I'm sure all of you are asking, what in the world is this Neurosuit thingy all about? Taken from the NeuroSuit website, its definition is as below:
The NeuroSuit™ creates a breathable, soft dynamic orthotic. It improves and changes proprioception (pressure from the joints, ligaments, muscles), reduces a patient’s pathological reflexes, restores physiological muscles synergies (proper patterns of movement), and loads the entire body (anti-musculature) with weight (a process similar to the reaction of our muscles to gravitational forces constantly acting up on us ).
All of the above normalizes afferent vestibule-proprioceptive input (information arrives to vestibular system). The vestibular system is a tremendously important center. It processes, integrates and sends back all the information that arrives from muscles, joints, tendons, etc. It influences muscle tone, balance and position of the body in space.
The more correct proprioception from the joints, ligaments, muscles, and tendons, the more correct the alignment. The NeuroSuit is a tool that allows the body to be correctly aligned with compression to the joints increasing proprioception dramatically!
Ridhwan with NeuroSuit founder, Patricica Gonzalez
But...as Jia Kenn's mother is contemplating too right now, the one hour session we had with Tricia(NeuroSuit's founder) somehow has not given us 100% confidence that this suit will work...but of course, when I remember what Tricia said to us, it takes time, just that its faster than the normal therapis we are doing....maybe its true ya?...wallahualam...
Well, the try out that Sunday was good...though I still feel an hour of testing wasn't enough to test the suit's capabilities....but one thing my husband was amazed was the fact Ridhwan could walk quite well without an AFO, which is a real plus point and he stood one time very straight and upright...something which he doesn't really want to do everytime we do it on him at home or even during physiotherapy...and the fact that he didn't resist and scream away when we wore him the suit..that's an even plus sign, which means that he must be feeling all the sensation given to him at one time from the suit..as I could see he was very quiet and thinking...must be thinking, apa benda ni! wow..what are these feelings....
Soooo..ntahlah, ikut harga, darn expensive...but, for Ridhwan I am willing to find or borrow it for him...but still...is it really worth it to spend that much...and will it really work? ....but then again, everything about a brain injured child needs repetition right....but if the repitition can be done with a tool that shortens the period to reach the milestones...that's even better right? ...truthfully...if i had that much of money in my bank..I'd go for it...what do have i to loose...okay, so my money..but there were examples that I saw on last saturday and it amazed me...so maybe different child will take different time...but if it helps somehow...why not right? ....I think I need to solat istikharah for this one....also wait for the feedback from our rehab dr. also, she looked pretty excited with this suit....so far our therapist likes the suit...but wether it would be useful for Ridhwan is still debatable as Ridhwan has progressed so well now...but then its that word, speed...faster....man, i want him to walk fast if I can kan!...sabar Reenaz...sabar...
Anyway...may Allah give me wisdom to decide this NeuroSuit thingy....and if ada rezeki to buy this..ada lah Insya-Allah....but for now, thanks Pui Yen for calling me about this suit...thanks Fezia for setting up the time to try out the suit ...and thank you Tricia for designing a wonderful contraption/tool that is helping so many special needs children out there!!
Posted by
Mamapinkie
at
9:35 AM
1 comments
Monday, July 27, 2009
Neurosuit seminar and try out
Okay will talk more about this suit...for now I'll be posting pics only....and to know more about Neurosuit, you may google it up and find quite a few pics of it and their main website is www.neurosuit.com ....I'll be back with more Neurosuit ya ;)
Posted by
Mamapinkie
at
12:06 PM
0
comments
Wednesday, July 15, 2009
Ridhwan's new school!
Anyway, I've only been to one class with Ridhwan at Tweedle Wink as he was down with chicken pox recently. But just by being in one class, I find that this class or centre is somewhat different from Shichida and is unique in its own way. For those mothers, who have been telling me that you are in the waiting list of Shichida or even been rejected, do try out Twiddle Wink as your 2nd choice as personally Shichida in some ways have helped Rdihwan a lot but maybe you could try with Shichida one year or two to get the ideas on how to do home practice and if you want new interesting brain development centre to enhance the child mentally and physically, yes, physically, one of the advantages and plus point that I see in Twiddle Wink is it's not just about seeing flashcards and playing games on the table, but there is trampoline time or rebounder as they call it there and even big ball time just like Ridhwan's physiotherapy at the hospital! Which is very good for normal or special needs child.
So, this weekend hopefully Ridhwan is going back to his class...after 3 weeks holiday...boohoo..sian Ridhwan every week asking "Class? ...class?"...and sometimes saying "Class time! class time!" but he was stuck at home....sian anak mama...anyway, looking forward for the next class! Lets "have fuuuun"! as Ridhwan would day ;)
Here are some pictures of our wonderful sensei Christy and us during her last day at Shichida...I do miss her a lot..she is such a great sensei to Ridhwan....
As usual, my dear son wriggling away when sitting on other people besides his mother and father and grandparents..aiseh Ridhwan....
Thank you for 3 wonderful Shichida years Christy, you have been a wonderful, patient and caring Sensei to Ridhwan. You're the best lah!
Posted by
Mamapinkie
at
11:24 PM
0
comments
Ridhwan has chicken pox!!!
Anyway, wonder all I can...he got it! It freaked me out a bit at first as hubby and I initially thought it was 'bisul' at his thighs but as usual the mother's instinct knows better...I told myself if this was not bisul, it sure looked like chicken pox...but then, he has no fever...and also it was that one little bisul which looked watery on his thigh, so I though, nantilah ask my mom and it was probably just bisul....and so the instinct was right!!..on Tuesday morning, he was covered with spots! Red spots and some watery!! Oh dear, it is chicken pox...but since the spots were so small unlike mine, when I had it at standard 5, loooong time ago...I was thinking, eh tul ke chicken pox nie or is this some other allergy or something...well, me and my mom decided, query all we can to ourselves, the best thing is to bring Ridhwan to his neuro paed in SDMC. And so, on a tuesday afternoon (cause she only has afternoon clinic on tuesdays) we brought Ridhwan to see his neuro paed....Yup, I was right, it was chicken pox! Though the thing was, he already had a vaccine jab in 2006...and somehow he still got it! But since he ajready had a jab, the neuro paed told me that it would probably be mild and from how it looks and spreading, it looks like a mild one and also since he had no fever...well, it is sort of good news as the one thing we would be worried is if he gets fever...and fever scares me cause it means, temp rising and fits....yes...the scarry thing called fits may just re-occur...nauzubillah...so in a way, it was sort of good its a mild one and he got it when he's young and also my dad said this would definitely boost his antibody and his body will be stronger..Insya-Allah...amin...
So, past one week, all I've been doing is putting calamine on all his spots...he was a bit cranky last week but he is such a good boy as he really didn't complain and not much crying you know...I am so proud of you Ridhwan, you are one strong boy and you really didn't cry much but was just cranky once or twice in a week because of feeling itchy..but that's it...otherwise he has been such a patient and calm boy...mama is so proud of you my love!!
Oh and today, he did something so sweet...he crawled to me quickly when he saw me as I just finished cooking his porridge and he tried to climb on me and said "Mother...mother...angkaaat...angkaaat..." ..yes....he sometimes likes to call me mother...hahaha...and then when I did eventually carry him, he hugged me and said "My mother!!".....gosh! I was surprised the fact he knows the word, 'My' and he used it with 'Mother' and to tell I am his mother!! You made my day today Ridhwan...you really did..and my son...your mother loves you so much and prays everyday you'll be a healthy and strong boy always...amin....
P.S Pic of him with calamine is coming soon ya...i get so engrossed in taking care of him sometimes that I even forgot to take pics of him...hehee...
Posted by
Mamapinkie
at
11:03 PM
3
comments



