Monday last week was Ridhwan's scheduled EEG..the last one we had was probably last year kot when he was warded for nearly 3 weeks....anywa, to my sadness but as I have expected, Ridhwan still has seizures in his brain...hmm...sigh...we arrived at SDMC around 9 am to go straight to Level 1, North Tower to the Diagnostic lab...I think I have been in that department so many times, I even know if they are new people in the department..some who knows me or recognise me I suppose would nod at me or smile at me...Today's lab technician or assistant..or what do they call themselves ya? Anyway, she was new..I think or... maybe old as in old staff yea ;)...but she was nice...anyway, this young lady was eager to perform the EEG test on Ridhwan but little did she know, Ridhwan just hates, and I mean HATES anything to be on his head or hair...so initally, it was quite a commotion in the neurology testing room 1 as we were trying to hold Ridhwan's hand..hold down his head and calming him down as the young lady tried to place the wires on Ridhwan's oh-so-comel head....that was hard for me...truthfully it was....why? well, first because he was moving his head non-stop trying to stop the young lady from placing any wires on his head...then he started to cry..alamak...this was hard for me...I noticed as the child gets older it gets harder to do any test on them cause they understand better and they show if they hate it or feel uncomfortable with what is being done to him...but after much coaxing and singing! Oh yes I sang Hahahaha...then he finally settled down and allowed the wires to be place on his head..mind you, banyak bebenor wires dia...though I am used to this test but somehowe I don't know why it gets a bit harder for me to see it these days but at least knowing this test would last around 3 hours, I'm somehow prepared about it...sort of...hehee....
Since Ridhwan refused to sleep! You see the EEG test needs the child to sleep for at least 30 minutes to check and see how the brain works during resting period...this is also good to see how the brain is during resting period where it should show no sign of seizures as it is resting..but so much for that!! No matter how many times I tried sleeping next to him...or even my husband tried to sleep next to him...he was just not interested to sleep...soooo, it looks like the 3 hour test is set to go! However, me and hubby took turns to go in and out of the room before we both become too agitated just like Ridhwan was getting to be....so, sometime during the test, I went and busy bodied myself in the next room to actually see the results of Ridhwan's test on the pc...and to my sadness...yup...its there alright even when he is practically lying down doing nothing..and so I disturbed the technicians about how in the world do you read the results..which is the right and which is the left...what in the world is that line doing that? ...and so forth...but all in all, I learned quite a lot in a very short time and sort of knew what the readings were all about....then after 3 hours of lying down on the bed....Ridhwan that is..we were finally asked to leave or in other words, dah abis test dah!!
Since the technicians and the young lady needed some time to properly tabulate the results or readings, they asked to come in an hours time...aiseh, that means, we can only see our neuro paed after lunch?!! Hmm..why am I not surprise..how ones memory seems to forget that this was the same scenario we went through last year...or wait, was it during Ridhwan being warded...hmmm..see...the mind..the mind...well, after a good lunch at the cafeteria, thank god the food there has always been yummy! heheee...we then made our way back to the diagnostic lab to get the results and then to the neuro paed's clinic....and after waiting for half and hour or so it was our turn to see the neuro paed....and not to my surprise, surely enough she said there are still seizures in Ridhwan's brain :( ..however, the sort of good news is the seizures are lesser than the previous EEG test we did....yahoo! walaupun tak hilang semua, its good news you know to know its slowly getting less...amin...amin...however, then only also I know from the EEG you sort of know if the brain is matured already and Ridhwan's was getting there but not yet fully matured...hmmm..and then the neuro paed showed a matured or a 4 year old brainwaves..and I was like...oooh...alamak...hmmmm....work it girl! work it!! yes...that was what came to my mind when I saw the difference in the brainwaves.....however, the visit to the neuro paed was as usual long ..however, fun this time as Ridhwan was actually interacting more with his neuro paed....but it then shows that seizures are still there..and we have got to make it go away....how..well for now its medications....additional pulak tu!!! sigh...but doa....that's one way to do it..most powerful thing you know the doa right...amin..Insya-Allah...
So all in all, seizures? expected..increase in medications? yes....sigh...otherwise its back to constant therapy and therapy and therapy.....so Ridhwan, our journey is still a long way to go....may Allah always be with us...and give mama strength to give what's best for you yea...Insya-Allah...amin...
Since Ridhwan refused to sleep! You see the EEG test needs the child to sleep for at least 30 minutes to check and see how the brain works during resting period...this is also good to see how the brain is during resting period where it should show no sign of seizures as it is resting..but so much for that!! No matter how many times I tried sleeping next to him...or even my husband tried to sleep next to him...he was just not interested to sleep...soooo, it looks like the 3 hour test is set to go! However, me and hubby took turns to go in and out of the room before we both become too agitated just like Ridhwan was getting to be....so, sometime during the test, I went and busy bodied myself in the next room to actually see the results of Ridhwan's test on the pc...and to my sadness...yup...its there alright even when he is practically lying down doing nothing..and so I disturbed the technicians about how in the world do you read the results..which is the right and which is the left...what in the world is that line doing that? ...and so forth...but all in all, I learned quite a lot in a very short time and sort of knew what the readings were all about....then after 3 hours of lying down on the bed....Ridhwan that is..we were finally asked to leave or in other words, dah abis test dah!!
Since the technicians and the young lady needed some time to properly tabulate the results or readings, they asked to come in an hours time...aiseh, that means, we can only see our neuro paed after lunch?!! Hmm..why am I not surprise..how ones memory seems to forget that this was the same scenario we went through last year...or wait, was it during Ridhwan being warded...hmmm..see...the mind..the mind...well, after a good lunch at the cafeteria, thank god the food there has always been yummy! heheee...we then made our way back to the diagnostic lab to get the results and then to the neuro paed's clinic....and after waiting for half and hour or so it was our turn to see the neuro paed....and not to my surprise, surely enough she said there are still seizures in Ridhwan's brain :( ..however, the sort of good news is the seizures are lesser than the previous EEG test we did....yahoo! walaupun tak hilang semua, its good news you know to know its slowly getting less...amin...amin...however, then only also I know from the EEG you sort of know if the brain is matured already and Ridhwan's was getting there but not yet fully matured...hmmm..and then the neuro paed showed a matured or a 4 year old brainwaves..and I was like...oooh...alamak...hmmmm....work it girl! work it!! yes...that was what came to my mind when I saw the difference in the brainwaves.....however, the visit to the neuro paed was as usual long ..however, fun this time as Ridhwan was actually interacting more with his neuro paed....but it then shows that seizures are still there..and we have got to make it go away....how..well for now its medications....additional pulak tu!!! sigh...but doa....that's one way to do it..most powerful thing you know the doa right...amin..Insya-Allah...
So all in all, seizures? expected..increase in medications? yes....sigh...otherwise its back to constant therapy and therapy and therapy.....so Ridhwan, our journey is still a long way to go....may Allah always be with us...and give mama strength to give what's best for you yea...Insya-Allah...amin...
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